Mobi Ì Strange Son ✓ 416 pages Download õ Portia iversen

Epub Strange Son

Mobi Ì Strange Son ✓ 416 pages Download õ Portia iversen ☆ Part memoir part detective story this is the powerful story of how two mothers from opposite sides of the world united in an effort to communicate with their severely autistic sons discovering breakthroughs that challenged prevailing theoD of teaching him in their one room apartment in Bangalore a classroom that lacked even running water Portia Iversen an Emmy winning art director whose life was turned upside down when her own son Dov was diagnosed with autism heard of Soma's miraculous story in the course of her own desperate search for a cure Under the auspices of Cure Autism Now the foundation she started with her husband that is now one of the largest funds for autism research in the world Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success Together Soma and Porti This is a complicated book to review because I have so many conflicting feelings about it It is absolutely a must read however for understanding autism You can learn in just this book that anywhere else Iversen the mother of an autistic son starts the foundation Cure Autism Now now merged with Autism Speaks with her husband She writes about her most important endeavor that of bringing over Tito Mukhopadhyay and his mother Soma from India Tito is labeled as severely autistic non verbal and with a lot of self stimulating and uncontrollable behaviors He has however learned a means of communication and is a published poet His mother Soma was able to teach Tito to point to letters on an alphabet chart and to write himself She is now a teacher of what is called the rapid prompting method and her techniue has worked on other children including Iversen's son The book then is a fascinating glimpse into autism itself Tito is not by any means recovered so he is often able to relate what it feels like to be autistic He writes that hand flapping is a way of feeling his body He has very little body awareness and hand flapping is a way of making sure he is still there Interesting Iversen talks about early ABA methods when they would shock students out of certain behaviors Despite shocking they could not make autistics stop hand flapping Most animals the scientists knew would stop certain behavior if shocked enough including to their own detriment such as not eating So hand flapping is essential behavior to autistics Tito also articulates the fact that much of his behavior remains beyond his control He is an interesting contrast to Temple Grandin whom Iversen talks to about Tito While Temple relies heavily on her visual sense and processing Tito is almost unable to use this sense at all and relies on his auditory sense In fact Tito relates that he can only use one sense at a time and if he is listening to something he is unable to make eye contact or notice anything visually It really is a fascinating glimpse into the autistic mind Soma is able to teach the method to Iversen's son and they are able to see that he has learned much than they knew One of the interesting things that they learn is that the communication is not always easy With both boys communication is still not like it is with 'typical' peers Communication alone is not a bridge to a so called 'typical' boy trapped with no communication Some things cannot be answered Even easy uestions such as what they want for breakfast But other things can be expressed with such depth and loveliness that it is astonishing Fascinating read I did not give it five stars because I did not care for the author much or for the way that the book was written She admits that she does not spend much time with her autistic son because she doesn't know how to be with him It seems that her other children have also suffered from neglect in her obsession with autism While I can sympathize as a mother dealing with autism myself I just found her a bit cold Also in her treatment of Soma who seemed to desire a closer relationship with the author While I understand that this might be difficult being from two different cultures was it necessary to recount this in the story as well as the author's rejection of her It was a bit weird and ruined for me what was an absolutely fascinating look into an amazing group of people

Portia Iversen Ê Strange Son Ebook

A have made remarkable progress in teaching their sons how to break through the walls of autism And in the process they have assisted scientists in making astonishing discoveries about the nature of autism itself Strange Son is the extraordinary account of two families who redefined how autism and autistic people should be treated all the while helping to answer some of autism's most baffling uestions and prompting new research Iversen weaves the twin stories of Soma and Tito and how Soma's methods mystified experts together with her own story of how she and her family came to understand Dov The result is a book suffused with uplifting human drama The cover and title of this book are in some ways misleading This is not a personal story or a memoir though it has personal elements and is written from the author's direct experience Primarily it's a medical mystery about autism written for the layperson It's in the vein of Lorenzo's Oil; showing how the sheer dedication and perseverance some might call it obsession of average parents can simultaneously save or drastically improve the life of a child and advance the cause of scientific inuiryEven if I didn't know Portia and Dov I would still love this book; anyone interested in cognition neuroscience and psychology should enjoy this immensely It's well written the pacing is great and it's inspiring You leave the book with tremendous admiration for Portia and Soma and a sincere desire to get to know the two extraordinary sons at the heart of the story

Book ð Strange Son Ê Portia Iversen

Strange SonPart memoir part detective story this is the powerful story of how two mothers from opposite sides of the world united in an effort to communicate with their severely autistic sons discovering breakthroughs that challenged prevailing theories about autism Tito Mukhopadhyay an autistic boy from India who spends most of his time flapping his fingers in front of his eyes has an I of 185 He favors the writings of Wordsworth and Ibsen He loves philosophy reads People and worries about conflict in the Middle East He also writes beautiful poetry That Tito can communicate at all is due to his mother Soma who single handedly developed a revolutionary metho Soma and Tito were endlessly fascinating and the only reasons I read this book cover to cover Once he joked about Portia's name and her being a lady lawyer not unlike her namesake In fact I had to fight against how much I was growing to dislike Portia and her narrative voice to finish the book Some of the reasons why I found the author nearly intolerable1 there is always a point when an activist or advocate becomes really ridiculously demanding and Portia was at this point often2 she seems to write off mentioning as understanding comprehension or worse compassion by this I mean she spent uite some time dwelling on how she and those around herclose to her felt about 911 and then after noting Soma's indifference to the tragedy Portia just added simply that Soma had been exposed to many traumatic religious political social upheavals and natural disasters than that she Portia could even imagine and then she moved onto something else entirely3 i can't help but feel like she characterized Soma unfairly she fit in really weird episodes of Soma's lack of understanding of how westerners tend to socialize she didn't go so far as to demonize or mock Soma's differences but I think in order to show that she was gregarious and open minded than a genuine attempt to accept and know Soma She seems concerned about her portrayal of herself in dealing with Soma than her portrayal of Soma4 regarding sexism she remarked that it was surprising to see Dov her own son learning that dolls are toys for girls a social rule as uickly as he had learn things like facts but when Tito Soma's son wrote to her something sexist she was bothered enough to complain to her husband Her husband subseuently lectured and 'converted' Tito to the cause of euality and Portia FELT SMUG I can't imagine taking issue on something like that with someone from a different culture just because I did not share his point of view much less if that person was severely autistic and even less if I also had a beloved son who was severely autistic I mean that's fucking petty5 speaking of petty a little girl in fact a friend of her daughter's innocently expressed incredulity when she learned that Dov also attended school In an effort to restore what she imagined must be Dov's hurt feelings she had Dov demonstrate the ability to do long division in front of the girls something she knew full well they had not mastered In fact she Asked them about it Knowing they weren't any good at it And then she proceeded to record their sounds of confusion and lack of understanding as Dov completed a problem What a petty thing to do with 4th graders one of whom is also her flesh and blood as much as Dov And finally I probably shouldn't have but I couldn't help but compared this book to a few nonfiction titles I had enjoyed most recently As far as a heartfelt memoir goes it pales in comparison with My Brother's Madness The only time I came close to tears was when Soma and Tito were doubted by the scientists Portia had led them to It read as though Portia was driven by her cause than her admiration for Soma or the scientists or even her love for Dov As far as an informative easy to read science popularizer so to speak goes this book is about as bad as The Emperor of All Maladies was good Mukherjee author of The Emperor was able to use foreign scientific terms and complex scientific concepts but in a manner so well ordered by logic that he was easy to understand In contrast Ms Iversen in an effort to be easily understood would use phrases or terms that could almost hold meaning in the most ordinary way never explain them and go on to use them to illustrate or support other units of knowledge that similarly remain elusive to her reader Also she seems to wonder a lot about what the scientific reality of any given phenomenon is without ever following up with anything in the way of experiments that could confirm or deny her speculations and suspicions To put it accusingly it would almost seem as if she's putting a lot of scientifically baseless ideas out there just for the hell of itTo sum it up as a biography of the journey undertaken by her and Soma and Tito and Dov it is abundantly clear that she painted herself in the best light and was likely unfair to Soma and Tito As a layman's guide meant to acuaint the average person with scientific strides made in the search for the cure of autism much in the same vein Mukherjee had documented cancer research it offered nearly no usable information The only thing interesting in this regard were the results of some tests that had been done with Dov Tito other low functioningnonverbal autistic children and Temple Grandin a high functioning autistic professional and author of multiple books on her uniue experience but Iversen was unable to guide her readers to the significance of these fascinating results Lastly as a piece of propaganda for CAN now Autism Speaks in longform it probably worked a lot better with people like Iversen than people like me in other words it ought to be wildly successful in this function as people like her are also likely to have the material means to help her cause